It’s the small things ~ May Edition

It’s time for the small things that made my month of May.

Hearing my boy say Mama for the first time 💙

Relaxing at the in laws

Family selfies on forest walks.

Enjoying peaceful naptimes in the sun.

Feeling grass for the first time.

Finishing a lovely weekend in Ireland being thankful.

Getting nursery ready.

Waving 😍

Blossom spotting.

Ending the day with gorgeous sunsets.

Visiting little horses and big wheels.

Enjoying first settling in session at nursery.

Al fresco dining in the park.

Celebrating turning 9 months old.

Coffee and cakes enjoyed outside.

Enjoying calming canal walks.

Loving how cute crossed baby feet are.

Sunshiney evenings enjoyed.

Sending the boy off to nursery.

Being welcomed back to work.

Making my desk a brighter place to be.

Enjoying new book day.

Snack time in the park.

Bag hooks at nursery.

First masterpieces from nursery brought home.

Finally capturing all the teeth!

Finishing the month off at arty messy play 😍

And that was the small things that made my month of May. Bring on June.

Claire xx

It’s the small things ~ April Edition

It’s time for the small things that have made my April.

Enjoying our first Easter with this little one.

Having Easter bubbles whilst enjoying my sister visiting.

Doing our first Easter Egg Hunt.

Making Adult and Baby portions.

Reading books.

Making the baby a playlist of his favourite songs from Baby groups.

Printing some family photos for the new hallway display.

Dressing the baby up (again!) at his music group Easter party.

Enjoying a little bit of playtime before getting dressed.

Falling in love with these blue eyes and smile more and more each day.

Being interviewed and appearing on STV news at 6.

Enjoying some down time at nap time.

Booking the husband is ideal Father’s Day activity.

Hunting for new cars.

Making this little ones day with a trip to the swing park.

Celebrating 8 months of O.

Making Daddy’s day.

Living his best back garden life.

looking up and only seeing blue skies.

Enjoying beers in the sun whilst the baby napped.

Collecting a hidden disabilities lanyard for travelling through the airport.

Stopping to admire the daffodils.

Spending Saturday afternoons riding horseys.

Trying to make the front of the house look pretty, next step repainting the front door.

Loving this boy more every day and wondering how I’m going to leave him in a few weeks to go back to work.

And those were the things that made my April.

Claire xx

Baby and Me ~ MS Diary

17 months ago I was diagnosed with Multiple Sclerosis

16 months ago I found out I was pregnant.

9 months ago my little boy was born.

What a whirlwind that all was!

I’ve not really written about what it has been like over those months of getting my head around having MS and then finding out that after 5 years of trying for a baby we were finally pregnant. There are many posts I should have written and maybe I will do still as I struggled to find others that were in my situation and writing about it. But the fact that it is MS Awareness Week this week has prompted me to write a post about how I’m managing my MS, new parenthood and the demands of my 9 month old.

Gosh even writing that feels weird, my baby is 9 months old (well nearly!) I have survived 9 months of him being in and 9 months of him being out alongside dealing with MS.

How’s it been? Good days and bad days, but isn’t that living with MS but also parenthood? Part of me is glad I got pregnant so close to diagnosis, I didn’t have time to dwell on it, I just had to get on with things. MS brings fatigue, New Baby brings extreme tiredness, where one starts and one ends is hard to tell sometimes but having my little boy to look after means that I have to dig deeper than I ever thought I could to make sure I’m there for him.

Day to day I still have a lot of residual symptoms from my major relapse post diagnosis. I find that I can only really focus on one thing, the baby comes first and I do find that I probably am doing a disservice to the rest of my life but currently I’m okay with that.

I’ve learned to adapt quite well, I have a particular way I can lift him up from the floor, a way to carry him down the stairs, a style of clothes that I know I can deal with without getting frustrated my fingers aren’t working well. Poppers on babygros are the Bain of my life but I can manage as long as I don’t try to do things in a hurry!

I organise everything for him the night before, write everything in my diary and have reminders set on my phone for important things on the days that brain fog sets in.

I am still breastfeeding him, something I never actually thought I would still be doing. It helps not to have to remember formula but is hard because I can’t just hand him to someone else.

Tiredness is probably the hardest part. If he doesn’t sleep or has an off day/night with no naps or lots of broken sleep then I really feel it, all my residual symptoms are exacerbated. Like today, he didn’t sleep so well last night for no real reason but today my left sided weakness has gone crazy! Today is a day where I know I have to be more careful, a day to not rush things, a day to get to bed early!

I don’t know what it’s like to have a baby and not have MS, what I do know though is it is totally possible to have a baby and have MS. We are prove of that.

Claire xx

MS Diary ~ MS Awareness Week and me

This week is MS awareness week. The hope being to raise more awareness of what Multiple Sclerosis actually is and how it affects people.

I have to be the first to admit that I never really paid much attention to it, I didn’t know anyone with it so why would I bother understanding what it was like for people to live with.

However if you are reading this then you do know someone with it! You now know someone that lives with this every day, slowly I am trying to find my way. I went quickly from diagnosis to pregnancy which brought with it lots of other things to think about. My MS has had to be put to the back burner quite a few times but it is always there. There is not much that others can do to help, apart from to understand that from the outside everything may look the same but from the inside things can be far from it at times.

Please take a moment this week to understand Multiple Sclerosis a little more, it will mean more to that person living with it than you will ever know.

It’s the small things ~ March Edition

Wow I am late publishing my small things this month! I must work harder!

So here are some of the small things that made my month of March.

Daffodils that always make me smile.

Decorating the house for St Patrick’s Day.

Celebrating my first ever Mother’s Day.

Celebrating 7 months of O.

Babies first ever St Patrick’s Day.

Schnauzers looking cute on hair cut day.

Seeing the first signs of spring.

Decorating the house for Easter.

Making Easter bonnets.

Family shadow photos.

Coffee and Cake dates. Afternoon and dairy free afternoon tea.

Making new family photo shelving in the hall.

Enjoying beautiful roses for Easter.

Enjoying the best Easter Saturday morning brunch.

Loving my Easter decorations in the living room.

And that was the small things that made my March.

Claire xx

It’s the small things ~ February Edition

It’s time for the small things that made me smile in February.

Sitting by ourselves for the first time

Coffee dates with my boys

Followed by a visit to the fishies.

Moving into our own room.

Gently reminding myself.

Having the most precious reminder of the day we finally could announce our dreams came true.

Loving the bond between father and son that is developing.

Enjoying wine at the end of long days.

Scruffy pups

My little valentine

Turning 6 months old

Getting ready for a birthday weekend away!

Pre birthday drinks.

Enjoying Edinburgh Lumen

Fun with Birthday photo props

Enjoying long vodkas

And dairy free pizza!

Dressing the boy up and doing the obligatory laughing.

Getting teether stuck on faces and thinking it’s super funny.

Making snow angels but unhappy with snow in the face.

Ending the month with the arrival of the #beastfromtheeast

And that was February! I’m going to do a little extra edition post for my very special birthday celebrations!

Claire xx

It’s this small things ~ January edition

I must get better at remembering to actually publish these posts! I still love taking photos of our day to day small things, these posts got me through many a tough month, now though most of my small things revolve around our own small thing (who is getting so much bigger by the day)

Anyway, better late than never, here are the small things that made January.

Starting the year off by enjoying the Fire & light show at the Helix Park.

Moving up into the big boy pram.

Turning 5 months old!

Taking first flights in his stride as we flew back to Ireland for a long weekend.

Having basin baths on holidays.

Enjoying the taste of Home.

Having first food tastes.

Being surprised by great friends when times were a little hard.

Deer spotting at the canal.

And that was the small things that brightened up my January.

Claire x

It’s the small things ~ December edition

It’s time to share the small things that made December (disclaimer, it’s santa pics heavy!)

Babies first reindeer feet.

Celebrating our baby boys christening.

Receiving our first ever santa letter.

Meeting Santa for the very first time.

Twinning for the Schnauzer doggy Christmas party.

Christmas trees going up.

Robin spotting on frosty walks.

Rocking first Christmas jumpers.

Turning 4 months old.

Meeting Santa for the 2nd time.

Putting the best pictures of all on our wall.

Seeing cards I never thought we would receive, with stockings I never thought we would hang and the baby I never believed we would have all in one picture.

Meeting Santa for the third time ?

Posing in the cutest gift.

Enjoying vegan Baileys

Carrying in Christmas traditions

Enjoying wine and twinkling lights.

Stealing precious kisses.

Espresso martinis by the tree on Christmas Eve.

Reading Christmas Eve stories.

First Christmas Eves enjoyed

Waking up on Christmas morning to the best gift ever.

Enjoying our first Christmas as a family of four.

Sunset canal walks enjoyed.

Coffee dates enjoyed with my boys.

First glimpses of snow captured.

New diary with New plans started.

And that was a glimpse into December.

2017 changed our world forever. I can’t wait to see what new memories we make in 2018.

Happy New Year everyone.

Claire xx

Medication and Me – MS Diary

Medication and to take it or what to take has been a thing that was pushed to the back of my mind when I discovered I was pregnant. There was no licensed medication at that point that was safe for pregnancy so the decision was made to wait until I was later on in my pregnancy and relook at it then for planning for post birth.

My MS team were great and we discussed at length medications that I could start post birth but these were only if I was not breastfeeding. We decided that we would arrange a prescription that could be filled if I was to stop feeding and decide to start the medication.

Roll on 4 months post birth and I’m super proud to say I’m still breastfeeding but unfortunately I am also experiencing a relapse. I’m unfortunately not one of the lucky ones that get protection from exclusively breastfeeding though I do still feel that this one is milder than the significant one I had last year.

Due to feeding myself I can’t opt for steroids to try to manage the relapse so it’s been a case of just trying to adapt and get on with things. Having Oran has made me have to do it rather than dwell on how rubbish I’ve been feeling but it’s also meant that I’ve not put myself first either and I feel that that may be working against me and prolonging the relapse.

This week I had another appointment with my MS team and they discussed medication that earlier this year was licensed for pregnancy, they weren’t sure if it was the same for feeding but it turns out it is. So after much discussion and soul searching I have decided to start it. The reason for the soul searching was mainly due to the fact that this medication is only available in injection form and will mean I need to self inject three times a week.

We are going to use it as an interim medication, so that I’m on something now which will hopefully help me to not relapse again – unfortunately MS medication does not stop you from your current relapse nor does it help with any residual symptoms you’ve had from previous relapses but works to stop your lesions from being so active in the future.

Here’s hoping it helps and I get on well with it.

Claire xx

MS diaries

I have decided to do some new posts on my blog. I’ve been neglecting things on here for far too long but am hoping that I now have a little extra time to focus back on here again.

I’ve wanted to write a little about my MS and pregnancy, labour and delivery and life with my son for a while and thought it would be good to write some MS diaries, so look out for them coming to the blog soon.

Claire x