Today the 31st May, marks world Multiple Sclerosis day. A day to raise awareness of Multiple Sclerosis worldwide, to show people what it is like to live with this illness day in and day out, to try to get a little bit more understanding of life with an invisible illness.
As most of you know who read my blog already, I was recently diagnosed with Multiple Sclerosis in the latter part of last year, though like most people, I have been most likely living with the illness for the guts of 10 years. I count myself lucky that up until the 20th August 2016 any symptoms that I was experiencing, that can now be linked to the illness were not impacting on my day to day life. That all changed on that day though when I lost the use of my left leg and slowly over the course of two weeks, the majority of my left side. It was a scary time and I was very lucky to get an urgent MRI which resulted in a very quick diagnosis.
My life changed forever on the day of diagnosis and slowly I am learning a new way of life, life that has to be planned that little bit more due to the high levels of fatigue that I now live with. My symptoms are mostly invisible to others, though when my legs decide to stop working everyone can see that part!
Mainly my MS affects my mobility, some of my more ‘invisible’ symptoms include: Numbness, weakness, spasticity, fatigue, bladder issues, bowel issues and fatigue. When I write it down like that it seems like a lot!
Multiple Sclerosis is an unwelcome visitor in my life but it is one that I need to learn to live with, please help me along the way by trying to understand it that little bit more.
I can’t believe I am writing this at 6.5months pregnant! I wrote here about my struggles with the amount of feelings that I wasn’t expecting when we found out after 5 years of battling infertility that we were finally pregnant.
I am pleased to say that overall the majority of these feelings have settled and I have been able to find enjoyment in this pregnancy which I am really pleased about. It took a lot of work on my part to get my head into a good place and I think that having our 20 week scan with no issues found really helped me turn a corner and have finally allowed me to enjoy this stage in my life. I know that we are likely to only ever be blessed with this once and I don’t want to look back and think that I wasn’t able to enjoy any of the moments associated with pregnancy.
We decided that we would find out the gender, it is something that we thought long and hard about but something that we knew in our hearts was right for us and we were not wrong. Finding out what we are expecting has really helped us to bond, to plan, to get even more excited and to feel that this is really happening. We are over the moon to say we are……
We are so excited to be on Team Blue and this weekend we even finally decided on his name. We are not going to be telling anyone that though as we do want to keep some surprises! But we love it and are hoping that everyone else does when he arrives.
A little pregnancy, how I am doing update I suppose wouldn’t go amiss. I am currently under consultant led care due to my recent diagnosis of Multiple Sclerosis (I am planning to blog more about my pregnancy and MS directly as time goes on) and will be back into see her when I am 32 weeks. She has offered me the option of induction at 38 weeks if my MS is proving to be too much of a problem so that will be something to think about as we get closer to the time of the appointment, currently I am undecided as to what is best but do know that I will be requesting induction at 40 weeks as there is no way my body could cope with going over and the stresses that that brings (stress really spikes off my MS symptoms) I was also told at my 20 week scan that I had a low lying placenta which currently is not something major to worry about as most will move by the latter stages of pregnancy but I will be re scanned at 34 weeks to check if this has happened, fingers crossed it will have and we will have had a bonus scan too so there are silver linings!
My bump is developing nicely, I am getting all the usual pregnancy related comments, ‘oh you are huge’ followed closely by someone else saying ‘oh you are so neat’! honestly though it did my head in so much when it started happening but now I am just trying to ignore it and embrace my changing body. After all it is growing our miracle.
I am going to try to blog a little more as we enter the third trimester, I was worried about upsetting some of my friends who are still in the trenches but I have to set that to one side as it was really affecting my enjoyment of this time in my life that I really didn’t think I would ever experience. If you think that you might be triggered by my posts I will not take any offence if you no longer follow the blog and I wish you all the best in your journeys.
It’s time for the small things that made me smile in April.
Daffodils as far as you can see.
Finding out we are Team Blue ??
Baby mags, coffees and sunbathing dogs.
Enjoying a lazy Easter long weekend.
Forever being reminded how lucky we are after 5 long years of battling infertility.
Beginning the hard task of name choosing.
Enjoying lazy Sunday mornings.
Raising awareness of Multiple Sclerosis in MS awareness week.
Reaching first viability milestone #6monthspregnant
Flying home for a lovely weekend with the family before the little man arrives.
And that was April